Marfan Syndrome

American Heart Association - Marfan's Syndrome
Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
http://www.americanheart.org/presenter.jhtml?identifier=4672

Canadian Marfan Association
Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.
http://www.marfan.ca/

A Diary about Marfan's
Marfan's patients diary of the diseases events in her life. Includes a list of links.
http://www.angelfire.com/ms2/CysticFibrosisMarfan/standingtall.html

International Federation of Marfan Syndrome Organizations
A global information center providing links to Organizations around the world.
http://www.marfanworld.org/

Life and Issues of Marfan's Syndrome
Personal site by which describes the pathology and gives a bit of advice.
http://www.io.com/~cortese/marfan/

Living With Marfans
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
http://jrmarfan58.com

Marfan Support and Information
Support group in New South Wales, Australia.
http://www.marfan.net.au

Marfan Syndrome
Article from eMedicine.
http://www.emedicine.com/PED/topic1372.htm

Marfan Syndrome
A guide to this connective tissue disease.
http://www.ygyh.org/marfan/whatisit.htm

Marfan Syndrome
Online chapter from The Merck Manual of Medical Information.
http://www.merck.com/mmhe/sec23/ch279/ch279c.html

Marfan Syndrome
A Question-Answer format page of information.
http://www.medicinenet.com/Script/Main/Art.asp?li=MNI&ag=Y&ArticleKey=411

Marfan Syndrome: Does Diet Play a Role
Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
http://www.ctds.info/marfan.html

Marfans Research Foundation
Irish charity with information on fund raising activities and the condition.
http://www.marfansresearchfoundation.ie

MFS Type 1 Fibrillin Gene
Major resources listed as well as genetic information.
http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=154700

The Mystery of Akhenaten: Genetics or Aesthetics?
A history of the pharaoh along with theories applied to what he may have had, including Marfan's.
http://www.heptune.com/Marfans.html

National Marfan Foundation
Providing accurate and timely information about the disorder to patients, family members and physicians.
http://www.marfan.org/

Questions and Answers about Marfan Syndrome
From the National Institutes of Health.
http://www.niams.nih.gov/Health_Info/Marfan_Syndrome/default.asp

Slovak Marfan Association
The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
http://marfan.szm.sk

South African Marfan Syndrome Organisation
Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
http://www.marfan.org.za

Univ. of Washington - Marfan Syndrome
What the disease is and includes the impacts on daily life.
http://www.orthop.washington.edu/arthritis/types/marfan/01